Acquiring Restricted Data from the Longitudinal Studies of Child Abuse
and Neglect (LONGSCAN)
General Information
The Longitudinal Studies of Child Abuse and Neglect (LONGSCAN),
Assessments is a set of five coordinated longitudinal research
projects using ecological- developmental theory to examine the
antecedents and consequences of child maltreatment. The National
Data Archive on Child Abuse and Neglect (NDACAN) makes LONGSCAN data
available to members of the research community who meet eligibility
criteria and agree to the
LONGSCAN
Data License (PDF). NDACAN has developed the following
procedures and documents in consultation with the LONGSCAN
Consortium to permit dissemination of these data while satisfying concerns about respondent
anonymity.
Eligibility
Only faculty and non-student research personnel at institutions
which have an Institutional Review Board/Human Subjects Review
Committee (IRB) can order the LONGSCAN Data.
The Institution's IRB must be registered with the U.S. Office for
Human Research Protections (OHRP) and appear in the
OHRP database. The OHRP has registered over 1700
institutions as having met procedural criteria for IRB's. Although
nearly all research universities and other research organizations in
the United States have IRB's registered with the OHRP, we are aware
that some institutions and legitimate researchers will be excluded
from access under this condition. Self-employed persons with no
institutional affiliation may not gain access to the restricted
data. NDACAN will have full discretion in deciding whether a
researcher meets eligibility criteria.
LONGSCAN
Data License
The
LONGSCAN
Data License (PDF) is a legal document among the Investigator,
the Investigator's Institution and the Data Archive (NDACAN) at
Cornell University. The Investigator may add research staff to their
license by submitting to NDACAN a signed original of the
Supplemental Agreement with Research Staff (PDF).
The Investigator may not grant access to additional staff until an
NDACAN signs the
Supplemental Agreements and
returned to the Investigator.
Student Access:
University students cannot order LONGSCAN data directly.
Students can gain full access if a faculty person (usually an advisor)
orders the LONGSCAN data and adds the student by submitting a
Supplemental Agreement with Research Staff (PDF).
The faculty advisor serves as the Investigator and primary contact
for license compliance and for receiving data updates from the
Archive so good communication between the Investigator and Research
Staff is essential. The faculty person and
institution bear full responsibility for ensuring that all
conditions of the license are met by the student.
Research Teams with Persons Employed at Different
Institutions
When a research team intends to use LONGSCAN but contains members employed
at different organizations, the ordering materials submitted to
NDACAN must designate in the cover letter the single Investigator
who will serve as the primary contact for the entire research team.
In addition, the co-investigators must each submit a
LONGSCAN
Data License (PDF) as part of the team's ordering materials.
Analysis Contracting
If an Investigator with an existing LONGSCAN data license chooses to contract with a firm
that will perform programming/analysis on LONGSCAN, the firm
performing the work must submit to NDACAN a
LONGSCAN
Data License (PDF) in which the firm's primary contact (e.g.
president or person that holds the greatest authority over other
team members from that organization) serves as the Investigator i.e.
the signatory to the license.
Steps for Ordering LONGSCAN:
- A cover letter on institution letterhead that
formally requests the LONGSCAN data
- The printed
OHRP database page which shows that your institution IRB is registered
with the U.S. Office for Human Research Protections
- A copy of your institution's policies and procedures on
scientific integrity and misconduct, including the name and contact
information of
the person or office responsible for enforcing them
- Two completed and original signature copies of the
LONGSCAN
Data License (PDF)
- Completed and original signature copies of the
Supplemental Agreement with Research Staff (PDF) for each member of the research team other than the
Investigator who will have access to the data
- A letter from your IRB showing that your IRB has approved your project.
- Mail items 1-6 to:
National Data Archive on Child Abuse and Neglect
Attn: LONGSCAN Data Request
Beebe Hall - FLDC
Cornell University
Ithaca, NY 14853
Please allow 3-6 weeks for
delivery.
